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20211129_002641

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CHA-085
CHA-085

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behind the scars
behind the scars

A photo of my scar taken by Sophie Mayanne for the Behind The Scars campaign.

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20211129_002641

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Chance4Charlie is a fundraiser for ongoing specialist medical treatment for Charlie, a young woman with Classical Ehlers-Danlos Syndrome

We are currently fundraising for a neurosurgery Charlie needs to have with her specialist neurosurgeon in Barcelona, Dr Gilete.

Charlie has Occult Tethered Cord and needs a tethered cord release surgery. We need to raise at least £30,000 for this surgery which is booked to take place on the 29th April 2022.

Tethered cords means Charlie’s spinal cord is inappropriately tethered to the inside of her spinal column causing too much tension in her spine. This is causing nerve damage and putting pressure on her spinal fusion and other unstable areas of her spine. 

In 2019 you all helped us raise enough for Charlie to have a life-saving spine fusion and jugular vein decompression with the same surgeon, which was very successful, but as Charlie’s condition is complex, serious and degenerate we were aware that more neurosurgeons would probably be in her future.

We are grateful for any support you may be able to offer towards our campaign.

The JustGiving page has no ended as we reached the time limit and is inactive, if you would like to donate please do so via the PayPal or direct bank transfer, deatils for this can be found on the donate page

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Total raised of £30,000 target:

Here are downloadable information sheets about the current fundraiser to share with your network!

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